Menu

Don’t Miss a Post!

Click the FOLLOW button on the lower right-hand corner of the screen, then enter your email address for automatic delivery of posts to your inbox.

Buzzard’s Myth Book Trailer!

INCREASING WINGSPAN A KICKSTARTER SUCCESS!

© 2012 BlogName - All rights reserved.

Firstyme WordPress Theme.
Designed by Charlie Asemota.

Gray Ghost: My Last Boat

April 7, 2014 - Author: Alva

TheLastBoat 8

 

With permission from Donna Harris and to promote Parkinson’s Awareness this month, we have released an excerpt from Buzzard’s Myth, where Alva tells about his sad realization of his limitations due to the disease, so much so that he could no longer play on the waters he so loved.

The short story includes a preface by his editor and a letter from Donna Harris, as well as photographs of husband and wife, the boat Gray Ghost, and Alva just a few months before he passed.

Please support the project and Parkinson’s Awareness by sharing this moving tale by a man who continues to inspire beyond the “recycled zone.”

Just $.99 on eBook.

Buy it on Amazon or B&N.

Share it with your friends.  Peace.

Editor/Publisher, Janet Green

Comments are closed - Categories: Blog Diary

My Beloved – Post by Donna Harris

March 22, 2013 - Author: Alva

On March 19, 2013 at 2:30 AM, Alva finally gave up the fierce battle he was waging with Parkinson’s. His steady and speedy decline culminated with the increasing aspiration of food and water that caused him to choke and cough violently. Over the past two weeks, he got noticeably weaker and finally told me, “I am too tired to fight any more.”  From the viewpoint of someone who loved him, it was challenging to watch him struggle so valiantly. So his family released him to the universe in hopes he would find peace and fulfillment.

Over the last two months, Alva found that as his physical capabilities deteriorated, his mind sharpened and focused more all the time. He literally could not fall asleep at night because he saw so many possibilities and became mentally energized. He began this blog, started a new book, investigated DNA testing and its possibilities regarding PD, and finally the power of the mind to create outside of itself even after the body is dead. It was this latter “epiphany” as he described it that allowed him to release self destruction as a choice for ending life. As such, he gave away the remaining handguns that he had in the house, one of which was hidden in the side pock of his recliner. When the recipient of that gift withdrew it, I was in shock at its presence. Alva was pleased with himself for having kept the secret so long.

So it is with love and appreciation I release Alva into his self constructed universe. I am so grateful that he is no longer suffering. The presence of his unique and fascinating person will never be replaced in my lifetime. Like air that fills the body, Alva invaded me and filled every fiber of my being with the power of his person. Only with his departure have I realized just how powerful his presence was. My eyes fill with the constant omnipresence of him in my life.  I love you Alva.

Your wife and soul mate.

Donna

Comments are closed - Categories: Blog Diary

Don’t Ask Why.

March 19, 2013 - Author: Alva

Tuesday, March 19, 2013

This is Jan, Alva’s friend and editor.

Alva passed this morning. 

I’m sad for me. But not sad for Alva.  He did everything he needed to do in this life and more.  His adventures are beginning anew in a different form today.  I wish I knew what he was doing now. 

Thank you for following my friend in his final days.

 

 

 

Comments are closed - Categories: Blog Diary

Post #19 – Honor of a Lifetime

March 10, 2013 - Author: Alva

Today I want to share what I feel is the culminating, greatest honor in my life.  75px-North_Carolina_State_University_Athletic_logo.svg

I received this letter recently from Chancellor of NC State W. Randolph Woodson: Letter from NC State Chancellor

An excerpt from Chancellor Woodson’s letter:

… your words, as they echo through the years, will mean more still to the students of NC State, infusing them with a renewed zest for life and sense of adventure.

NC State students, faculty and staff should have access to this work, one so thoughtfully written by a member of the Wolfpack family, the first ever to receive a PhD in Animal Ecology. So on behalf of the university, it will be an honor to share “Buzzard’s Myth” in our libraries. I think we can all stand to gain some wisdom from your brave and candid recollection of a life filled with wonder and joy but also struggle.

 

 

Comments are closed - Categories: Blog Diary

Post #18 – Unorthodox

March 5, 2013 - Author: Alva

10:25 a.m. Tuesday March 5, 2013

I intend to go against the traditional medical privacy practices by presenting my complete medication schedule for Parkinson’s:

Medication schedule

SEVEN AM
2 Carbidopa/Levodopa  25-100 mg
1 Neupro Patch  8 mg/24 hours
1 Aspirin 81 mg
1 Citalopram (for depression)10 mg

ELEVEN AM
2 Carbidopa/Levodopa

THREE PM
2 Carbidopa/Levodopa

SEVEN PM
2 Carbidopa/Levodopa

ELEVEN PM
2 Carbidopa/Levodopa 50/200 Extended release
1 Zolpidem 10 mg

AS NEEDED:
Hydroco/Acetaminop  5-500 mg 1 or 2 for pain
Ducolex (laxative)

This was last reviewed and approved by a Parkinson’s neurological PA in August 2012.  Since then I have come under Hospice care. I partially assumed self-diagnosis/self-medication and periodically make requests such as increasing the steroid level from 0.5 to 1 mg.
The Hospice nurse has included standard treatment for pain. 

Added since Hospice care started:

Morphine Sulfate  0.25 TO 0.5 ml as needed
Dexamethason (steroid) 1 mg  twice a day
Eq Senna-S (for bowel) 50 mg twice a day

The reason for this blog is to share with caretakers and concerned people the level of my treatment and to remove any perceived secrecy about treatment, so they may make their own comparisons.  I have never had the benefit of such comparisons.

Physically, I can still stumble to the commode and the bed with the aid of a walker.  But today, at the recommendation of Hospice, a hospital bed will be installed in my sunroom because of continued slow deterioration.

 

Comments are closed - Categories: Blog Diary

Follow

Get every new post delivered to your Inbox

Join other followers:

%d bloggers like this: